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Jenn speaking at Stand Up For Science in Sacramento
  • Advocacy, Education, Policy

Standing Up for Science

Science is the path to a world where we understand NEC, can #preventNEC, and build ...
Jenn and Noah reading to Micah
  • Advocacy, Education

NICUs Should Give Books to Their Babies

Research has proven what we instinctively know: reading offers neuroprotective benefits to babies. When families ...
Jenn with Micah in the NICU
  • Advocacy, Education

10 Things to Know When Your Baby is Diagnosed with NEC

The NEC Society is committed to collaborating with healthcare providers and patient-families to facilitate NEC ...
Jenn giving Micah a kiss on his forehead
  • Advocacy, Education

Rainbows to Remember Micah

I created Rainbows to Remember Micah as a way to transform a day wrought with ...
Jenn and Micah
  • Advocacy, Education

Rare is Everywhere

While it is important for us to emphasize how frequently NEC happens in the NICU, ...
Reed sleeping
  • Bereaved, Family Story

Remembering Reed

We took turns holding Reed, pouring every ounce of love that we had into him ...
Dr. Hackam holding a baby in the hospital
  • Advocacy, Education, Recently Diagnosed

Fighting the Phantom Menace of NEC

“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
Leslie and Jennifer holding Forever Our Little One and a picture of Micah
  • Advocacy, Bereaved, Family Story

Forever Our Little One

Forever Our Little One is a storybook for families to read together after the devastating ...
tree of courage painting
  • Advocacy, Bereaved, Family Story

The Story Behind the Tree of Courage Painting

My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after ...
  • Advocacy, Education, Policy

NEC Awareness Resolutions

We chose May to be NEC Awareness Month because we will only build a world ...

Let’s Turn Pain Into Power

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