Resources for Bereaved Families

If you have lost your beloved child, we offer our deepest condolences. 

Support After Loss

Losing a child is one of the most profound and unimaginable losses a family can face. The NEC Society is here to offer support and guidance during this heartbreaking journey by providing resources tailored to bereaved families. From literature to  and practical advice, these tools are designed to help you find solace, navigate grief, and connect with others who understand the depth of your loss. You are not alone, and we hope these resources bring some measure of comfort during this difficult time.

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Helpful Articles

This collection of articles is designed to support families, caregivers, and healthcare professionals in understanding necrotizing enterocolitis (NEC).

Mother nursing newborn in the hospital
In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune properties that protect ...
Staff grouped together holding NEC Society sign
The NEC Symposium brought together 200 participants from 9 countries and 35 US states to advance research and quality care. Together, we are building a ...
Micah Life Celebration
Created by bereaved parents for bereaved parents. What we wish someone had told us when our baby passed away from NEC. ...
Jenn and Micah
Created by parents of NICU babies impacted by NEC: what we wish we had known from day one in the NICU. ...
baby in the NICU
This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities of NEC, emphasizing the need for more research and understanding ...
Jenn and Micah
When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks ...
2021 NEC Symposium- Virtual Session picture of everyone on the virtual call
The NEC Society presented the 2021 NEC Virtual Sessions in partnership with Cincinnati Children's and attracted 300 diverse stakeholders from 16 countries and 40 US ...
Speaker on stage at 2019 NEC Symposium- University of Michigan
The NEC Society presented the NEC Symposium in Ann Arbor, Michigan, June 2 – 5, 2019 with generous support from the Patient-Centered Outcomes Research Institute ...
Audience at the 2017 NEC Symposium- University of California Davis
The NEC Symposium at UC Davis, entitled “A Transdisciplinary Approach to Improved Outcomes”, was held in April 2017. The Symposium was the first meeting in ...