NEC prevention through collaborative research

Committed to advancing NEC research, education, and advocacy in partnership with patient-families, clinicians, researchers.

Research Incubator

A Place for the NEC To community to engage

The NEC Society Research Incubator provides a space for the NEC community to engage in research questions and collaborate from inception through implementation and evaluation. Members include physicians, scientists, multidisciplinary professionals, and patient-family advocates affected by NEC.

Lab pic bench and gel making

NEC BIOREPOSITORY

Improving our understanding Of NEC

The goal of the NEC biorepository is to help fragile newborn babies by improving our understanding of the disease necrotizing enterocolitis (NEC).

The biorepository may be used for many scientific research projects. One project underway is the creation of a single-cell atlas of the human neonatal intestine. A single-cell atlas includes detailed information about individual cells and how these cells are different in healthy intestine compared to during NEC.

Microscope, scientist and man working in laboratory

Scientific Advisory Council

Leading the Charge in NEC Research

The NEC Society’s 12-seat Scientific Advisory Council is committed to advancing NEC research, education, and advocacy in partnership with patient-families and other multidisciplinary stakeholders. Many of the Council members are internationally recognized leaders in the field and have dedicated their careers to neonates at risk of necrotizing enterocolitis. The Scientific Advisory Council works directly with the organization’s leadership and oversees all of the NEC Society’s projects, content, and materials.

Misty Good MD MS

Patient-Centered Research Priorities

When it comes to necrotizing enterocolitis (NEC), there are so many unanswered questions and very few resources. Our multidisciplinary team undertook a two-year project to identify the most urgent and impactful research topics to help our community decide where to direct the limited funding and resources available for NEC research. The team first identified over 150 potential research topics, and collaboratively narrowed these to 20 prioritized topics, using the Delphi method. Explore the Top NEC Research Topics. 

Latest research articles

Mother nursing newborn in the hospital
In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune properties that protect ...