Families at the Heart of Our Mission

Our Patient & Family Advisory Council provides essential insights and guidance, ensuring families’ voices shape our work and drive meaningful change.

Empowering Families to Lead the Way

We recognize the value of patients’ and families’ lived experiences. The Patient-Family Advisory Council provides a formal mechanism for patients and families to provide feedback, insight, and advice on our work. The Patient-Family Advisory Council is an official standing advisory committee to the NEC Society, just like our Scientific Advisory Council.