NEC Biorepository research facility
Uncover Life-Saving Answers for Newborns
Background
Empowering NEC Research Nationwide
A biorepository is a research facility that collects and stores biological samples for research. Our biorepository holds samples from numerous medical centers across the country. Researchers share the samples, making it easier to study NEC.
Process
Unlocking Life-Saving Insights
The biorepository collects samples of blood, stool, urine, saliva, and stomach fluid from babies in the NICU. It also collects breast milk samples from the birthing parent. If a baby in the NICU has intestinal surgery for NEC or any other condition, intestinal tissue that would have otherwise been discarded is saved for the biorepository.
Eligibility
Driving Research Forward
Two types of babies are eligible to participate: 1. Babies who are in the NICU and have developed NEC, and 2. Babies who are the same age as another baby who has developed NEC. Only babies at NEC Biorepository centers can participate.
Breaking New Ground Together
“The NEC Biorepository was started to build collaboration between scientists across the country. I strongly believe that building a world without NEC requires the dedicated commitment of a community of scientific investigators, families, and clinicians.”
Misty Good, MD, MS & NEC Biorepository Director
Project Spotlight
This highlighted project represents a vital step forward in neonatal health. Through such work, we’re paving the way for improved care, better outcomes, and, ultimately, a future where NEC is preventable.