A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact of necrotizing enterocolitis (NEC), a life-threatening condition. Despite brief moments of hope, Ditya’s condition worsens, and after 63 days of fighting, she passes away in her mother’s arms. In her memory, the mother commits to supporting the NEC Society to prevent similar heartbreak for other families.

Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially spent two nights in the NICU. Despite early signs of health, Matilda developed necrotizing enterocolitis (NEC), leading to a series of medical interventions and surgeries; she now lives with short bowel syndrome, requiring ongoing care and support.

After losing her daughter Leyden to NEC, a mother reflects on the heartbreak and the unanswered questions, emphasizing the need for awareness and understanding of this devastating disease.