News & Insights

Exploring Progress and Advocacy in NEC Research and Support

Latest from the NEC Society

Welcome to the NEC Society News & Blog – your source for the latest developments, stories, and expert insights in the fight against necrotizing enterocolitis. Here, we share news from the field, advocacy updates, research breakthroughs, and stories of hope and resilience.

Education

How to Optimize the Use of Mother’s Own Milk in the NICU

In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune properties that protect ...

Education, Symposium

2023 NEC Symposium

The NEC Symposium brought together 200 participants from 9 countries and 35 US states to advance research and quality care. Together, we are building a ...

Education

10 Things for Bereaved Parents to Know

Created by bereaved parents for bereaved parents. What we wish someone had told us when our baby passed away from NEC. ...

Education

10 Things All Parents of NICU Babies Need To Know

Created by parents of NICU babies impacted by NEC: what we wish we had known from day one in the NICU. ...

Publication

NEC Society Statement on Lawsuits

The NEC Society is not involved in the litigation around formula and NEC because we remain focused on our mission. Lawsuits are not a strategy ...

Education

I Gave My Baby Breast Milk. Why Did She Develop NEC?

This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities of NEC, emphasizing the need for more research and understanding ...

Family Story

Love You Forever, Ditya

A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact of necrotizing enterocolitis (NEC), a life-threatening condition. Despite brief moments ...

Impact Report

Impact Report 2022

Our community is paving new paths toward a world where infants & families never experience the devastation of necrotizing enterocolitis. ...

Family Story

Matilda’s Story

Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially spent two nights in the NICU. Despite early signs of ...

Impact Report

Impact Report 2023

In the past year, the NEC Society expanded its reach and influence globally, uniting families, clinicians, and scientists in a powerful movement to eliminate NEC. ...

Research, Toolkit

Neonatal Probiotics Toolkit

A single-cell atlas includes detailed information about individual cells and how these cells are different in healthy intestine compared to during NEC. ...

Publication

Long-term Outcomes of NEC

Necrotizing enterocolitis (NEC) is a devastating intestinal disease that primarily affects premature infants. Necrotizing enterocolitis is associated with adverse two-year outcomes, yet limited research has ...