NEC Society background
Who We Are
The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education.
What We do
Our comprehensive programs are designed to drive impactful research, provide quality education, and advocate for positive change.
Research Incubator
A space for the NEC community to engage in research questions and collaborate from inception through implementation and evaluation.
Biorepository
The NEC biorepository aims to support fragile newborns by advancing our understanding of necrotizing enterocolitis (NEC).
Long Term Outcomes
Long-term outcomes and life-impacts of necrotizing enterocolitis: A survey of survivors and parents
Research Priorities
A collaborative project uniting families and experts to identify top research priorities for NEC, guiding critical funding and resources toward patient-centered solutions.
NEC Registry
The NEC Registry will help us better understand the life-altering effects of necrotizing enterocolitis.
Probiotics Toolkit
A resource for clinicians and NICUs seeking to better understand probiotic use in the NICU.
How We Started
The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son died from complications of NEC just before his first birthday. Today, patient-families and experts from around the world work together to improve outcomes for the most vulnerable infants at risk of NEC.
