How to Optimize the Use of Mother’s Own Milk in the NICU
In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune properties that protect against many devastating infections, including necrotizing enterocolitis (NEC).
2023 NEC Symposium
The NEC Symposium brought together 200 participants from 9 countries and 35 US states to advance research and quality care. Together, we are building a WORLD WITHOUT NEC.
10 Things for Bereaved Parents to Know
Created by bereaved parents for bereaved parents. What we wish someone had told us when our baby passed away from NEC.
10 Things All Parents of NICU Babies Need To Know
Created by parents of NICU babies impacted by NEC: what we wish we had known from day one in the NICU.
NEC Society Statement on Lawsuits
The NEC Society is not involved in the litigation around formula and NEC because we remain focused on our mission. Lawsuits are not a strategy used by the NEC Society towards our vision of a world without NEC.
I Gave My Baby Breast Milk. Why Did She Develop NEC?
This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities of NEC, emphasizing the need for more research and understanding around its causes and risk factors.
Love You Forever, Ditya
A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact of necrotizing enterocolitis (NEC), a life-threatening condition. Despite brief moments of hope, Ditya’s condition worsens, and after 63 days of fighting, she passes away in her mother’s arms. In her memory, the mother commits to supporting the NEC Society to prevent similar heartbreak for other families.
Impact Report 2022
Our community is paving new paths toward a world where infants & families never experience the devastation of necrotizing enterocolitis.
Matilda’s Story
Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially spent two nights in the NICU. Despite early signs of health, Matilda developed necrotizing enterocolitis (NEC), leading to a series of medical interventions and surgeries; she now lives with short bowel syndrome, requiring ongoing care and support.
Impact Report 2023
In the past year, the NEC Society expanded its reach and influence globally, uniting families, clinicians, and scientists in a powerful movement to eliminate NEC.
